Harmonee has started to gain weight again though! Not as fast as she dropped but it is coming back. Her tummy looks so good too! It has stayed at 48.5 since Monday(ish). Yay Harm!
Yesterday while talking to her transplant coordinator she seemed not to have much hope of going home before her transplant. In a way that would be a good thing. Since we have been back so many times in the past 2 months and only staying home for hardly a week at a time, it seems more realistic. The hospital is where you come to feel better... after that your just open for more illness, especially a baby in her situation. Which is the draw back along with not going home in itself. Hopefully we will be able to be home by Easter. It would be our first holiday out side of the hospital since thanksgiving! Not to mention Layla is just missing her little sister. Nap time isn't the same with out cuddling up next her little Marne. Brandon (daddy) hasn't been able to come up as much as he would like either, making him want his sleepless nights back, at least for a week (hopefully more).
I will be happy to get home to sleep in an actual bed and be able to see Layla and Brandon everyday! I am due for a week of stress free family time AT HOME.
Everyone has been emailing me and text messaging me, "where are the pictures?" I am sorry, I left my phone hook up at home this time. As soon as I get my hook up I will put some on. I was looking at the pictures I have taken from this hospital stay. Healthy days and sick days, the pictures seem to go in a roller coaster with her ups and downs. You will be surprised how one night changes the way she even looks in pictures.
**Harmonee's PELD score is 24**...it dropped :/.