Saturday, December 18, 2010

Surprise! Its Surgery!

After getting out of the hospital last weekend and thinking everything was okay Harmonee's liver labs jumped again! Doctor Book called on Thursday to set up plans to go in to have a CT scan (cat scan) on Friday.

This scan was to figure out what is truly wrong with Harmonee's liver. Biopsy came back good, with out any rejection... then why high liver labs?

After Harmonee's cat scan recovery or in other words, 'sobering' her up from the sedation we went up to talk to Dr. Book about the results.

Apparently, Harmonee's portal vein looks like someone has tied it off with a rubber band. This causeing low blood flow, but not necisarily high liver labs. But first thing first, fix the problem that we DO no is wrong. On Tuesaday Harmonee is going in to dialate her portal vein. This is a very serious problem, but not a very serious surgery. This part of the surgery is done by a radiologist. Unfortunetly... and we are hoping this does NOT happen, if the radiologist cannot fix the problem, they will have to do a major surgery to get inside of her liver. Also, if her labs continue to rise... we will be starting from scratch to figure out what is making everything go off the records. But again... lets hope that doesn't happen either.

Sunday, December 12, 2010

Biopsy Results

 Talking to Daddy through her IV. When the nurses came in she would hold up one hand to hold them away, put her IV to her ear and start talking to Daddy (Sad that this is what she knows is "daddy" I know.) Harmonee: "Hi Dad. Yeah. Uh huh. Uh uh. Yeah. Dad. Yeah. Yeah. Uh huh. No. Yeah. Bye Dad"... Daddy was there in spirit!
On Friday Doctor Book called wtih concerning news that Harmonee's liver labs had yet to go done, but up! We were admitted with a full schedule, that night she would have an ultra sound and in the morning a biopsy.

Ultra Sound:
The ultra sound came back not so good. Harmonee's portal vein has a spot of scar tissue that has made the vein narrow, not letting blood go through it easily. This happens with most liver transplants they said. It can make the liver act funny by making it swell. This is fixed by surgery.

The biopsy came back PERFECT! No rejection! YAY! But... there was some swelling found, but only caused by a small cold. The doctors said that her liver must have taken the hit, and then the cold finally hit Harmonee this morning.

Ending Results:
We were sent home today, with everything the same as it was. You cant be to careful with high liver labs. Fortunetly we now know about her portal vein, and will be able to watch it and quickly fix it before it does anything dangerous.

That was our weekend scare. I was a little nervous about it being like last december, but it wasn't and I hope this will be our last hospital stay this winter!

Wednesday, December 08, 2010

Lab Trade Up

If its not liver its kidneys, if its not kidneys its liver. UGH. HARMONEE LYNN!! Harmonees labs last week came back with a touch of CMV, but her kidney labs were looking better. Dr. Book ordered another set of labs on monday. This was not a good day. For starters, the weather was to bad to get to labs that morning. So... that night when we made it out, Harmonee ended up grabbing and taring out 4 separate pokes, blood going EVERYWHERE, burises and cuts and so much more, until the 5th time three people had her pinned down. Literally.

Tuesday morning came and we got a very worried phone call. Harmonee's liver labs are now showing VERY high. This could mean rejection. Fortunetly, Dr. Book is hoping that this increase is due to the medicine being used to treat her CMV. On Friday she has more labs. Depending on what they show, and hopefully they will look much better then Mondays, but if they dont, she will go in for a biopsy this weekend. Lets hope this doesn't happen. But I guess if it does, at least there are things that can reverse it right!?