Wednesday, May 05, 2010

Day 8

Harmonee just got out of the OR from closing up her tummy and switching out lines. The surgeon came out and said she did great! Now we start another waiting game to see if closing her tummy works. Dr. Scaife said she was losing to much protein and to many white blood cells to keep her open. Keeping them in her body should help her heal her body better.

There has been no change since yesterday. No better, but no worse either. Her little body is getting tired and she is still very sick. Her liver is completely failed, her kidneys are in failure and they are hoping to save her lungs before they being failing. The doctors are still hoping to plan out her future with a liver transplant, but they will give her another week. On Wednesday they will have a meeting to see if they will allow her to have a transplant or not. If not, we will take her home and be with her until her body fails. If we are allowed a transplant she will have one within hours of the go ahead and we will spend the rest of the hospital stay recovering. I personally have no doubts about her recovering! The doctors are amazing here, and they still have things to try and a lot of hope for her! I hope by June we will either be home, or in the ICS with the other liver babies.

Sorry everyone who came that I had to turn
you away after driving so far.


  1. Glad to hear the surgery went well. Our prayers are with you. Your family has such amazing strength!

  2. I am hoping that with this surgery, she will get stronger and she will get the liver that she desperatly needs. I am thinking of you and your family.

  3. harm---you keep fighting. we know you can do it. we love you so much and are rooting for you. love you f.
    lizzie and lu

  4. Hi Farrah, my name is Hope Im a tech on IMSU, I had Harmonee once, not sure if you remember. I just wanted to tell you that I am praying so hard for her! She is so precious and I know she will pull through and get that new healthy liver!! I follow your blog and check it like 5x a day to see how she is doing. I hope you and your family are doing ok! Keep up the fight Harmonee!!!

  5. Farrah and Brandon...sending my love, best wishes, and tons of hope for Harmonee. I love you guys so much.

  6. I'm a friend of Liz's & Lu's- I'm praying & hoping for Harmonee to keep fighting and persevere...she looks so brave & I have no doubt she CAN!!!

  7. Keep fighting beautiful little Harmonee!! You are such a little trooper!! I am praying for you!