loving being back in her own bed was snoring,
giggling and talking in her sleep. Layla slept
great knowing that sis was just feet away! They
both slept in the next morning! THANK YOU!
another day, another NPO order, another
delay, another UPSET baby!
this fun little toy while waiting for Harmonee
"Look mommy," she would say, "Like this."
Layla decided to pretend she was Harmonee
by putting her binki in her mouth and
sitting in her place. Silly.
I also got to see Liz and London. Talking to Liz is always a great help, especially how open she is and how willing to help she is when talking about the ups and downs of waiting for a liver. I could talk to her for hours. I watched London walk around while waiting for the doctors to come see us both, I could only imagine Harmonee doing that in a few months. London looks great, happy and healthy one year old! Everything that I want Harmonee to be in October.
We got Harmonee's PICC fixed on Saturday and since then we have been getting use to doing it ourselves. We need a little practice, but we aren't half bad if I do say so myself. Of course we are a little more... maybe a lot more, paranoid then we were with her NG tube, but with it being a sterile procedure and it being a little more risky if you mess up, it only obvious why.
Harmonee's stool is also so green it is almost black. The nurse told me her son had biliary atresia when he was born as well. We both thought it funny how little things like dark stool color catches our eye. All in all Harm is doing great! Still stable, still waiting for a liver, and still gaining the weight!